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For more information on the following services, please contact your closest Resource Centre or Support Worker
In several cities across the country, HSC runs social/recreational programmes for individuals with Huntington disease. These provide an enjoyable outing for the person with HD, as well as respite for the family.
A number of support/discussion groups are held on a regular basis across Canada. They are facilitated by our social workers and provide an opportunity for families to share information and coping strategies, and to offer support to one another.
The Society offers several week-long summer camp programmes which allow people with HD an opportunity to take part in therapeutic social and recreational activities. The camp experience allows those with HD to re-discover their abilities and talk about their frustrations and fears with others who share their feelings. The camps also offer a respite for caregivers.
Our Resource Centre Directors make outreach visits to other communities in their provinces. On these visits, they meet families and health professionals and provide information and support.
Our Resource Centre Directors also provide in-service education seminars to professionals in health care facilities and community agencies.
Working with local staff and volunteers, we investigate potential supportive housing arrangements for people in the mid-stages of HD. The Society�s approach is to work with established housing agencies and have them develop housing initiatives on our behalf.
We also help identify long-term care facilities which have, or are willing to take, a special interest in HD. Our professionals help their staff develop techniques and strategies which meet the unique care needs of those with advanced HD.
Every October, representatives of our cross-Canada network get together for one weekend to share ideas, keep abreast of current research and care strategies, celebrate the successes of the past year, and plan for the future.