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Support in /
du Canada

Chapters and Area Representatives
Les sections locales et les représentants régionaux

Alberta / l'Alberta

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Fort McMurray Chapter
Mr. Fred Zoe
Tel: (780) 743-8491

Grande Prairie Area Rep
Mrs. Heather Tomshak
Tel: (403) 766-3357

Hinton Area Rep
Mr. Maurice Blondeau
Tel: (780) 865-4265

Lethbridge Area Rep
Mrs. Faith Wood
Tel: (403) 329-9343

Medicine Hat Area Rep
Mrs. Sharon Hager
Tel: (403) 548-7210

Northern Alberta Chapter
Mrs. Terri Taylor
Tel: (780) 469-6442

Peace River Area Rep
Mr. Merv Hinson
Tel: (780) 624-1601

Southern Alberta Chapter
Mr. Joseph Hunter
Tel: (403) 286-7756

British Columbia / la Columbie-Britannique

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Creston Area Rep
Mrs. Mary Thomas
Tel: (604) 428-5824

Fraser Valley Area Rep
Ms. Brenda Anderson-Budnark
Tel: (250) 530-6048
Fax: (250) 532-6027

Kamloops Area Rep
Mrs. Lorraine Corrigan
Tel: (250) 752-0727

Kelowna Area Rep
Mr. Henry Ficke
Tel: (250) 768-0868

Nanaimo Area Rep
Mr. Ken Redrup
Tel: (250) 954-0780

Northern Vancouver Island Area Rep
Mrs. Fran Preston
Tel: (250) 287-8319

Southern Vancouver Island Area Rep
Mrs. Geri Stewart
Tel: (250)478-6461

Vancouver-Lower Mainland Chapter
Mrs. Thoren Young
Tel: (604) 980-1074

Manitoba / le Manitoba

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Brandon & Area Chapter
Ms. Sandra Harrison
Tel: (204) 726-8323

Winnipeg Chapter
Mr. Barry Pratt
Tel: (204) 885-9449

New Brunswick / le Nouveau-Brunswick

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Bathurst Area Rep
Mrs. Mary MacLean
Tel: (506) 546-2775

Dalhousie Area Rep
Ms. Nancie Quigley
Tel: (506) 684-3318

Fredericton Area Rep
Ms. Shirley McKinney
Tel: (506) 451-7229 evenings

Saint John Area Rep
Mrs. Holly McKenna
Tel: (506) 847-8738

Sussex Area Rep
Mrs. Kathy Baskin
Tel: (506) 433-2728

Newfoundland / la Terre-Neuve

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Bonne Bay Area Rep
Mrs. Dianne Burden
Tel: (709) 458-2980

Corner Brook Area Rep
Mrs. Doreen Janes
Tel: (709) 634-4878

Newfoundland & Labrador Chapter
Mr. & Mrs. Ian Janes
Tel: (709) 753-4495

Nova Scotia / la Nouvelle-Écosse

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Bridgewater Area Rep
Mrs. Karen Oakes
Tel: (902) 275-3700

Cape Breton Area Rep
Mrs. Natalie Lejean
Tel: (902) 539-6846

Cumberland County Chapter
Mrs. Beatrice Gray
Tel: (902) 897-6836

Halifax/Dartmouth Regional Chapter
Mr. Jim Russell
Tel: (902) 861-1201

Truro Area Rep
Mrs. Margaret McLearn
Tel: (902) 897-3826

Ontario / l'Ontario

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Algoma Area Rep
Mrs. Shirley MacKay
Tel: (705) 782-6636

Durham Area Rep
Ms. Andrea Oosterlo
Tel: (905) 985-3270

Essex County Area Rep
Mr. & Mrs. Richard Rivard
Tel: (519) 735-9586

Grey-Bruce Area Rep
Mrs. Marion Genoe
Tel: (519) 538-2725

Hamilton District Area Rep
Ms. Diane Cranston
Tel: (905) 639-1038

London and Area Chapter
Mr. Glenn Groves
Tel: (519) 485-1938

Mississauga/Oakville Area Rep
Mrs. Inge Dodds
Tel: (905) 826-3395

Niagara Peninsula Chapter
Mr. John Stainsby
Tel: (905) 945-0512

Nipissing Chapter
Ms. Jeannine Lapointe
Tel: (705) 753-6163

Ottawa & Area Chapter
Mr. Peter Etue
Tel: (613) 258-5660
Fax: (613) 238-1306
Email:[email protected]

Peterborough Area Rep
Mrs. Sandra Melville
Tel: (705) 639-5480

Quinte Area Rep
Mr. Mike Hodges
Tel: (613) 392-0156

Sault Ste. Marie Area Rep
Mrs. Sharon Ledyit
Tel: (705) 777-3119

Simcoe County Area Rep
Mrs. Terry Hanson-Lamb
Tel: (705) 456-3447

Sudbury Chapter
Mrs. Dianne Bouffard
Tel: (705) 525-1407

Thunder Bay Chapter
Mrs. Cheryl Rossetti
Tel: (807) 577-5370

Timmins Area Rep
Mrs. Lynne Zerkee
Tel: (705) 268-3705

Toronto Chapter
Mr. James Wiswell
Tel: (416) 658-9293

Prince Edward Island / l'Îsle du Prince Édward

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Prince Edward Island Chapter
Mr. Stephen Hurst
Tel: (902) 888-2283
Fax: (902) 888-2283

Quebec / le Québec

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Huntington Society of Quebec
Tel: (514) 282-4272

Saskatchewan / le Saskatchewan

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Esterhazy & Yorkton Area Rep
Mrs. Debbie Pask
Tel: (306) 745-6298

Regina Area Rep
Mrs. Kathy Gieg
Tel: (306) 584-9308

Saskatchewan Coordinator
Mrs. Carol Ellis
Tel: (306) 472-5761

Saskatoon & Area Chapter
Mr. Jim Edgar
Tel: (306) 374-1206

S.E. Saskatchewan Chapter
Mrs. Barbara Dennis
Tel: (306) 739-2896
Fax: (306) 739-2730

Resource Centres
Centres de ressources

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Alberta / l'Alberta

Northern Alberta / l'Alberta du nord
Barbara Swan
Director
HD Resource Centre
c/o St. Joseph's Auxiliary Hospital
10707-29th Avenue
Edmonton, AB T6J 6W1
Tel. (403) 434-3229
Fax (403) 430-9777
Email:[email protected]

Southern Alberta / l'Alberta du sud
Ms. Loretta Young
Social Worker
HD Resource Centre
Carewest Fanning Centre
722-16 Avenue N.E.
Calgary, AB T2E 6V7
Tel/Fax: (403) 284-5651
Email:[email protected]

British Columbia / la Columbie-Britannique

BC
Ms. Susan Tolley
Director
HD Resource Centre
Queen's Court
Suite 250-625 Agnes Street
New Westminster, BC V3M 5Y4
Tel(604) 515-1212
Fax(604) 515-1203
Email:[email protected]

Manitoba / le Manitoba

MB
Ms. Sandra Funk
Director
HD Resource Centre
825 Sherbrook Street
Winnipeg, MB R3A 1M5
Tel. (204) 772-4617
Fax (204) 786-0860
Email:[email protected]

Nova Scotia / la Nouvelle-Écosse

NS & PEI
Ms. Linda Geyer
Director
HD Resource Centre
Box 763, RR # 1
Tantallon, NS B0J 3J0
Tel./Fax (902) 823-2004
Email:[email protected]

Ontario / l'Ontario

Toronto
Ms. Nancy Webb
Director
HD Resource Centre
6 Lansing Square, Suite 227
North York, ON M2J 1T5
Tel. (416) 494-1221
Fax (416) 494-9299
Email:[email protected]

Northern Ontario / l'Ontario du nord
Ms. Sandra Russell
Director
Northern Ontario HD Resource Centre
P.O. Box 153
Val Caron, ON P3N 1N7
Tel: (705) 897-8884
Fax: (705) 897-8842
Email:[email protected]

Eastern Ontario / l'Ontario d'est
Mr. Paul Klodniski
Director
HD Resource Centre
880 Wellington Street, Suite 700
Ottawa ON K1R 6K7
Tel. (613) 233-5838
Fax (613) 238-1306
Email:[email protected]

Prince Edward Island / l'Îsle du Prince Édward

NS & PEI
Ms. Linda Geyer
Director
HD Resource Centre
Box 763, RR # 1
Tantallon, NS B0J 3J0
Tel./Fax (902) 823-2004
Email:[email protected]

Quebec / le Québec

PQ
Ms. Brigitte Rioux
Social Worker
505 boulevard de Maisonneuve Ouest
Bureau 900
Montreal, PQ H3A 3C2
Tel: (514) 282-4272
Fax: (514) 282-4242
Email:[email protected]

Saskatchewan / le Saskatchewan

SK
Ms. Alice Gibson
Director
HD Resource Centre
Department of Medical Genetics
Royal University Hospital
Saskatoon, SK S7N 0W8
Tel. (306) 655-1699
Fax (306) 655-1736
Email:[email protected]

Support Workers
Travailleurs sociaux / Travailleuses sociales

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British Columbia / la Columbie-Britannique

Fraser Valley
Ms. Carla Reed
Tel: (604) 556-7200

Manitoba / le Manitoba

Westman
Ms. Sandra Koch-Gensiorek
Tel: (204) 728-2449

Ontario / l'Ontario

Barrie Area
Ms. Suzanne Cameron
Tel: (705) 735-1444

Cambridge/Guelph/Kitchener-Waterloo
Ms. Sheryl Millson
Tel: (519) 620-2251

Hamilton
Ms. Dianne Collinson
Tel: (519) 647-9824
(Please note: this is not a long distance call)

London
Mr. Corey Janke
Tel: (519) 660-0670

Kingston
Ms. Glenna Marsh
Tel: (613) 353-2396

Peterborough
Ms. Linda Brown
Tel: (705) 295-4973

Windsor
Ms. Gioia Levesque
Tel: (519) 979-3211

Niagara
Ms. Bev Eybel-Misch
Tel: (905) 957-1133

Thunder Bay
Ms. Janne Kerbashian
Tel: (807) 767-9337

Quebec / le Québec

Quebec City
Ms. Marie Deschambault
Tel: (418) 823-1901

Predictive Testing Clinics
Les cliniques pour le test prédictif

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Predictive testing clinics perform the genetic test for HD and offer genetic counselling. Before testing, a genetic counsellor helps the individual explore reasons for taking the test, and prepare for receiving the results. After testing, counselling is geared to offering support and assistance in understanding the impact of either negative or positive test results, both on the individual and the rest of the family.

Alberta / l'Alberta

Edmonton

Dr. John Stephen Bamforth
University of Alberta Hospital
Medical Genetics Clinic
853 Medical Sciences Building
Edmonton, AB T6G 2H7

co-ordinator / co-ordinateur
Tel: (780) 407-7333
Fax: (780) 407-6845

Calgary

Dr. Oksana Suchowersky
Division of Medical Genetics
Alberta Children's Hospital
1820 Richmond Road SW
Calgary, Alberta T2T 5C7

co-ordinator / co-ordinateur
Heidi Hogg
Tel: (403) 229-7371
Fax: (403) 543-9100

British Columbia / la Columbie-Britannique

Vancouver

Dr. Michael R Hayden
Department of Medical Genetics
University of British Columbia
RM F168-2211 Wesbrook Mall
Vancouver, BC V6T 2B6

co-ordinator / co-ordinateur
Susan Creighton
Tel: (604) 822-7738
Fax: (604) 822-7970

Victoria

Dr. Patrick MacLeod
Medical Genetics
Victoria General Hospital
1 Hospital Way
Victoria, B.C. V8Z 6R5

Tel: (250) 727-4461
Fax: (250) 727-4295

Manitoba / le Manitoba

Winnipeg

Dr. Cheryl Greenberg
Health Sciences Centre
Section of Genetics and Metabolism
FE229 - 820 Sherbrook St.
Winnipeg, MB R3A 1R9

co-ordinator / co-ordinateur
Tel: (204) 787-2499
Fax: (204) 787-1419

Newfoundland / la Terre-Neuve

St. John's


Dr. Bridget Fernandez
Newfoundland & Labrador
Medical Genetics Program
Janeway Child Health Centre
Janeway Place
St. John's, Newfoundland A1A 1R8

co-ordinator / co-ordinateur
David McGregor
Tel: (709) 778-4363
Fax: (709) 778-4190

Nova Scotia / New Brunswick / Prince Edward Island
la Nouvelle-Écosse/le Nouveau-Brunswick / l'Îsle du Prince Édward

Halifax


Maritime Medical Genetics Service
IWK Grace Health Centre
5850/5980 University Ave
Halifax, Nova Scotia B3J 3G9

co-ordinator / co-ordinateur
Jill Beis
Tel: (902) 428-8754
Fax: (902) 428-8709

Ontario / l'Ontario

Kingston

Dr. Mohamed Khalifa
Division of Medical Genetics
Department of Paediatrics
Queen's University
20 Barrie Street
Kingston, Ontario K7L 3N6

co-ordinator / co-ordinateur
Ruth Lokkesmoe
Tel: (613) 533-6310
Fax: (613) 548-1348

London


Regional Medical Genetics Centre
Children's Hospital of Western Ontario
800 Commissioners Road East
London, Ontario N6A 4G5

co-ordinator / co-ordinateur
Cathy Corley
Tel: (519) 685-8140
Fax: (519) 685-8214

Mississauga

Ms. Anaar Sajoo
Medical Genetics
Credit Valley Hospital
2200 Eglinton Avenue West
Mississauga, Ontario L5M 2N1

Tel: (905) 813-4104
Fax. (905) 813-4347

North Bay

Ms. Francine Robert\Kim MacDonald
North Bay & District Health Unit, Genetics Program
681 Commercial Street
North Bay, ON P1B 4E7

Tel: (705) 474-1400 x 225
Fax. (705) 474-8252
 

North York

Dr. Wendy Meschino / Anne Summers
Clinical Genetics Diagnostic Centre
Room 392 - North York General Hospital
4001 Leslie Street
North York, Ontario M2K IEI

co-ordinators / co-ordinateurs
Andrea Shugar
Tel: (416) 756-6345
Fax: (416) 756-6727

Oshawa

Dr. H. Allen Gardner
Director, The Regional Genetic Service
Lakeridge Health Corporation
1 Hospital Court
Oshawa, Ontario LIG 2B9

co-ordinator / co-ordinateur
Maureen Johnstone
Tel: (905) 576-8711
Fax: (905) 721-4736

Ottawa

Dr. Alasdair Hunter / Judith Allenson
Division of Genetics
Children's Hospital of Eastern Ontario
401 Smyth Street
Ottawa, Ontario K7H 8L1

Co-ordinator / co-ordinateur
Claire Goldsmith
Tel:  (613) 737-2275
Fax: (613) 738-4822

Peterborough

Peterborough Country Health Unit
Genetics Program
129 - 380 Armour Road
Peterborough, Ontario K9H 7L7

Tel: (705) 748-2021
Fax: (705) 748-3865
Email:[email protected]

Sault Sainte Marie

Helen Kwolek / Lori Russon
Genetics Clinic
Algoma Health Unit
Civic Centre
99 Foster Drive
Sault Sainte Marie, Ontario P6A 5X6

Tel: (705) 541-7143
Fax: (705) 759-1534

Sudbury

Ms. Heather Hare, Bsc / Valerie Allison, RN / Dolores Fortier, RN
Genetic Counselling Services
4 Boland Avenue
Sudbury, Ontario P3E IX7

Tel: (705) 675-4786
Fax: (705) 675-7911

Thunder Bay

Ms. Cathy Gillies / Linda Spooner / Jan Schween
Genetic Counselling Services
Thunder Bay District Health Unit
999 Balmoral Street
Thunder Bay, Ontario P7C 4X8

Tel: (807) 625-5900
Fax: (807) 623-4341

Timmins

Ms. Lorraine Garon/ Linda Collins
Porcupine Health Unit
Genetics Department
Bag 2012 - 169 Pine Street South
Timmins, Ontario P4N 8B7

Tel: (705) 267-1181 Ext. 364
Fax: (705) 264-3980

Quebec / le Québec

Chicoutimi

Mme Claude Provost
Conseillère en génétique
Complexe Hospitalier de la Sagamie
305 St. Vallier
Chicoutimi, Québec G7H 5H6

Tel: (418) 541-1000 Ext. 2153
Fax: (418) 541-1138

Montreal

Dr. David Rosenblatt
Division of Medical Genetics
Royal Victoria and Montreal General Hospitals
687 Pine Avenue West
Room H5.63
Montreal, Quebec H3G 1A4

co-ordinators / co-ordinateurs
Suzanne Dufrasne, Montreal General Hospitals
Tel: (514) 937-6412
Fax: (514) 934-8273
Lidia Kasprzak, Royal Victoria Hospital
Tel: (514) 843-1231 x 5745
Fax: (514) 843-1712

Saskatchewan / le Saskatchewan

Saskatoon

Dr. Ed Lemire
Department of Medical Genetics
Royal University Hospital
Room 515, Ellis Hall
University of Saskatchewan
Saskatoon, SK S7N OXO

co-ordinators / co-ordinateurs
Sharon Cardwell
Tel: (306) 655-1692
Fax: (306) 655-1736
 

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