Schedule
Preliminary Program
as of July 7th, 2003
The
16th Meeting of the International Huntington Association
"Updating
Dr. Huntington"
A Program Marking the 125th Anniversary of "On Chorea"
Much
in the world has changed since George Huntington published "on
Chorea," his 1872 paper describing the disease that has come
to carry his name. 125 years later we have reproductive choice,
the identification of a juvenile form, the development of rehabilitation
and explosion of biotechnology are examples. These speakers from
around the world consider how far we have come and point out what
may lie ahead. Every topic in the program is a development or innovation
since Dr. Huntington first cared for the families in Easthampton,
New York, USA 125 years ago.
Wednesday, August 20th, 2003
|
| 9:00 a.m. |
Welcome
Christiane Lohkamp, Deutsche Huntington Hilfe (Germany)
President International Huntington Association (IHA) |
| 9:15 a.m. |
Evolution of Lay Associations:
Our Host: Huntington Society of Canada
Isla Horvath, Executive Director, HSC
|
| 9:45 a.m. |
Questions about HD
A Panel of Leading International Researchers |
| 11:15 a.m. |
Coffee Break
|
| 11:45 a.m. |
New Implications for Children
Bonnie Hennig, University of Connecticut (USA) |
| 12:15 p.m. |
The Identification of Juvenile HD
Marie McGill, Scottish Huntington's Association |
| 12:45 p.m. |
Lunch |
| 1:45 p.m. |
Making Mole Hills Out of Mountains
Deborah McQuaid, Scottish Huntington's Society |
| 2:15 p.m. |
Diagnostic Guidelines
Christiane Lohkamp (Germany) and Ineke Lonink (Netherlands) |
| 2:45 p.m. |
An Example of Multimodality Treatment As Offered In A Specialized
Nursing-Home Unit
Dr. Hans Claus, (Netherlands)
|
| 3:15 p.m. |
Break |
| 3:45 p.m. |
The Creation of Specialized Care
Centers
Jim Pollard, Laurel Lake Center (USA) |
| 4:15 p.m. |
Delegates Brainstorming and Planning
Session
"What Type of Future IHA Program Best Meets Our Needs"
Christiane Lohkamp and Isla Horvath |
| 5:00 p.m. |
Closing Remarks
Christiane Lohkamp |
| 5:15 p.m. |
Adjourn |
| Later That Evening |
Dinner - Get Together |
Thursday, August 21st, 2003
|
| 10:00 a.m. |
IHA Business Meeting
Christiane Lohkamp |
| 11:00 a.m. |
Coffee Break
|
| 11:15 a.m. |
Huntington's Disease
and Predictive Testing In Iran
Dr. Fabiola Hormozian, (Iran) |
| 11:30 a.m. |
Huntington's Disease In Cuba
Dr. Tatiana Zaldivar Vaillant, (Cuba) |
| 12:00 a.m. |
The Situation of
HD Families in Zimbabwe
Manu Prajapati, (Zimbabwe) |
| 12:15 p.m. |
The Polish HD Society and HD in Poland
Dr. Dorota Hoffman, (Poland) |
| 12:30 p.m. |
Closing
Christiane Lohkamp |
Top
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WORLD FEDERATION OF
NEUROLOGY RESEARCH GROUP ON HUNTINGTON'S DISEASE
|
INTERNATIONAL
HUNTINGTON
ASSOCIATION |
HEREDITARY
DISEASE
FOUNDATION |
Huntington's
Disease Society
of America |
|
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