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Huntington Society of Canada
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Arnold Foss Guest
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Posted: Fri May 02, 2003 10:47 am Post subject: Welcome |
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Just dropped by to say Hello, and to introduce myself.
I am the current Camrose, Alberta Chapter President.
I think this area could be a valuable resource and communication
platform for all our volunteers, and hopefully lead to more
discussion and better understanding of the problems we all face
in our efforts agains Huntingtons.
Looking forward to some exciting conversations with the rest
of you.
Arnold |
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Wanda Kawalilak Guest
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Posted: Sat May 03, 2003 8:37 pm Post subject: What a great idea this is! |
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Arnold,
What a coincidence . . . I came on here to snoop and you beat me to it! This forum is a great idea! Once the people start posting, it will be an incredible source of information. There is also an e-mail forum on the web that is very informative: http://www.hdac.org/huntdis/
Well, talk to you later!
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Dusty BLues Guest
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Posted: Mon Jun 23, 2003 7:59 am Post subject: glad you are here |
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Hi,
I am a PHD as was my sister, mother, some uncles and grandfather. My mother did not have things like conferences to go to, although she had more continuous care, and home support than I have, and she only knew the people in her family with HD.
I found the conference in Niagara Falls to be especially wonderful because I was able to be with other PHDs, to look and see my mother in the group, and to realize that while I hated my mother, that it is fine and confortable to be with other people who have HD, and probably the most important thing is for PHD's to reach out to each other.
Thanks for your work on our behalf.
Dusty |
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John Craenen Guest
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Posted: Wed Sep 10, 2003 9:54 am Post subject: Fantastic Tool |
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YES! This is a great idea.
I'm John Craenen, president of the London, Ont. and area chapter. We really need to exploit this forum. The potential is limitless. |
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